DSO&Co Privacy Policy

Down Syndrome Opportunities and Connections CIC

1. About this policy

DSO&Co takes your privacy seriously. This policy explains what information we collect, why we collect it and how we use and protect it.

DSO&Co works with children, young people and young adults with Down syndrome, so we take particular care when handling personal information.

DSO&Co is registered with the Information Commissioner's Office (ICO) as a data controller.

2. Information we may collect

Depending on the activity or service, we may collect:

  • Full name

  • Age or date of birth

  • Parent, carer or support person's name

  • Email address

  • Phone number

  • Booking and payment information

  • Information about support needs or anything that may help us support the person attending

  • Emergency contact information where needed

  • Photo and video consent information

  • Information provided when you contact us or make an enquiry

We only ask for information that is relevant to providing our services.

3. How we use your information

We may use your information to:

  • Process bookings and payments

  • Provide activities and services

  • Contact you about bookings or activities

  • Prepare for an individual's participation

  • Respond to enquiries

  • Manage waiting lists

  • Keep appropriate records

  • Support safeguarding and the safety of participants

  • Improve our activities and services

We will not use your personal information for purposes that are not explained in this policy unless we have a lawful reason to do so.

4. Children's information

Some of the people who use DSO&Co's services are children.

Where information is provided on behalf of a child or young person, we expect the person providing it to have permission to do so.

We take additional care with children's personal information and only collect and use information that is necessary for our activities and services.

5. Information about support needs

You may choose to tell us about support needs, communication needs, medical information or other information that may help us provide an activity safely and appropriately.

Please only provide information that is relevant and necessary.

We will handle this information carefully and only use it where there is a legitimate reason for doing so.

6. Photos and videos

DSO&Co may take photographs or videos at some activities and events.

Permission for photographs and videos is requested separately and is not a requirement for attending an activity.

Please see our Photography & Video Policy for more information.

7. Who we may share information with

We will not sell or rent your personal information.

We may share information where necessary with:

  • People directly involved in providing an activity or service

  • Appropriate professionals or organisations where necessary for safeguarding

  • Service providers who help us operate our booking, payment, website or communication systems

We only share information where there is a relevant reason to do so.

8. Keeping your information secure

DSO&Co takes reasonable steps to protect personal information from being lost, misused, accessed without permission or disclosed inappropriately.

Access to personal information will be limited to people who need it for their role.

9. How long we keep information

We will only keep personal information for as long as we reasonably need it for the purpose it was collected, including for record keeping, legal or safeguarding purposes.

When information is no longer needed, it will be securely deleted or disposed of where appropriate.

10. Your rights

Depending on the circumstances, you may have rights regarding the personal information we hold about you, including the right to:

  • Ask what personal information we hold about you

  • Ask for inaccurate information to be corrected

  • Ask for information to be deleted where applicable

  • Ask us to restrict how we use your information in certain circumstances

  • Object to certain uses of your information

  • Withdraw consent where we are relying on consent

If you would like to exercise a privacy right, please contact DSO&Co.

11. Contact

If you have any questions about how DSO&Co uses your personal information, please contact us using the contact details provided on our website.

Last updated: September 2026